My Story

When I went through liver failure and transplant the PSC Support community provided me with great understanding, wisdom and care and they continue to be a vital resource for those suffering with PSC. PSC has no cure and there are no effective treatments for it but PSC Support have committed to funding £1million of research before 2030 and I want to help towards finding a cure or treatment for this disease that has impacted so greatly on the lives of many of us.

I am one of the lucky ones to have had a successful liver transplant and to now be enjoying life again but it's been a hard journey to get here. 13 years after being diagnosed with PSC, my liver began to fail in 2019 and it became clear I was heading towards needing a transplant. At the end of 2021 I became much more fatigued and jaundiced and itchy and after 4 months on the waiting list, I had a liver transplant in July 2022.

To celebrate 2 years of life after transplant and to raise money to help research into PSC, I have decided to cycle from my home in Oxford to the Royal Free Hospital in London where I had my transplant. The plan is to see if I can wake up at home at the time I got the call for transplant (1.30am) and then cycle to the Royal Free to be there by the time I was collected to go down to the theatre (11am). I have two amazing friends, Tim and Al, who will be joining me to see if we can complete the 95km cycle in time.

I realise the world does not need any more middle aged men in lycra but, if you can spare any money to help a great charity, we would be really grateful!